After a fun weekend on the lake, we took the kids to Abilene for Cousin's Camp with Nana, Papa and Memaw. This was the second year their younger cousin Hannah joined in the fun. Sadly, the week was shortened for Delaney.
We received a call on Monday, July 7th that the EEG results were abnormal and we needed to begin seizure meds and we needed to have an MRI. This had already been ordered previously in the event it would be needed. After talking to Dr. Kokash, we determined that Delaney could do this without sedation (looking back now I laugh because if you know Delaney, you know she rarely sits still or stops talking). John and I talked and decided that this was important enough to get her from Cousin's Camp if it could be scheduled. They gave us two dates a week apart. We chose the sooner one. So off I drove to Abilene on Wednesday night to pick up Delaney and bring her home. I must say that was a very emotional trip home as Delaney did not want to leave camp, especially knowing it would continue without her.
Thursday, July 10th the three of us drove back to Temple to the McLane Children's Hospital for the MRI. Again they let one of us stay with Delaney. So we said goodbye to Dad in the waiting room and headed to the back. The radiology tech who was administering the MRI was amazing, with a very calm demeanor. She set up the movie we brought (did you know that they have movie goggles for kids during the MRI?) Delaney wanted to bring Frozen, but she thought she might break out into song so she chose Madagascar 2 instead. Delaney was put into the helmet with the goggles and slid into the machine. God is good!! She laid perfectly still for the scans, 1 minute, 2 minutes, 9 minutes, 7 minutes. In between each scan the tech talked to her through the headphones and allowed Delaney to scratch and wiggle. Then the tech came into the room and said we were waiting on a nurse to come and place the IV for contrast. Looking back now, my momma's heart knew at this moment something was amiss and I struggled to maintain my composure. I questioned her about the contrast because I knew the original order was for an MRI without contrast. Her response was, "the radiologist wants a better picture of the abnormal spot that the showed on the EEG, so the contrast will light it up." WHAT!! No one said anything to us about an abnormal SPOT on the EEG. They only said the results were abnormal. My limited medical mind assumed abnormal just confirmed she was having seizures. We had not even prepared Delaney for this possibility. So the nurse came in and explained what she was going to do and I stood on the other side and distracted her. Just a few tears. Then she was super cold and shivering - thanks to the contrast. One of the other techs brought her a warm blanket. Amazing. Exactly what she needed. Back she goes into the helmet and machine. Cue the movie and one last 5 minute scan. Afterward, the tech told us that Delaney sat still for all the scans and did not have to repeat a single one!! Praise the Lord!! I asked about results and again we were told we would have them on Monday. Back to Dad and back to Waco for lunch.
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| "They must have known I like pink" |
We sat down with our food and I received a call from Dr. Kokash's nurse asking us to come to the office when we were done with MRI. I told her we finished an hour ago and were back in Waco and were told not to expect results until Monday. She said they had results and Dr. Kokash wanted us to return today. We finished quickly and sent out text messages with what was happening and while attempting to stay strong and not loose it emotionally we headed back to Temple.
Dr. Kokash asked if he could talk to us without Delaney. So she sat in the hall and we saw the scans. She has a tumor. The scan showed a dark spot and we were told that was a fluid filled cyst. Her diagnosis was a cystic tumor in the right temporal lobe. She needed surgery to remove it. We told the MD Delaney needed to see and hear this as well. So we brought her back into the room, showed her the scans and gave her the diagnosis.
We made it out to the car and began to leave, then the tears began to fall. We pulled over and John wrapped her up in his arms. Such a picture of where we are right now. Wrapped up in the arms of our Heavenly Father, allowing the tears to fall.
God is good. He knows the outcome of this journey that we have begun. He is okay with us being scared, he is okay with us asking questions, he is okay with the tears and the admittance that we do not want to have surgery. The one thing he asks is that we trust him, bring our fears to him, cry out to him. In the end we come full circle acknowledging that Delaney has accepted Jesus as her personal Lord and Savior. He lives in her and through her. We will continue to glorify God in our circumstances and we know that we will come out stronger on the other side.
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